3 years ago today I had neurosurgery.
It feels like yesterday and forever ago all at the same time. I forgot the date was coming up and I am caught off guard. All the feels.
#TetheredCord #NEISvoid #MEspine #RareDisease #ChronicPain #ChronicIllness #SpinalCordInjury
"Preparing and planning to self-advocate when dealing with medical professionals who may be unfamiliar with the diagnosis."
'I Got COVID 9 Months Ago and Still Have Symptoms'
Dr. Melissa Geraghty
On 12/2/20 at 5:51 AM EST
At the beginning of 2020, when COVID-19 was still only in the peripheries of our awareness, I was recovering from neurosurgery. I have a rare neurological disease, tethered cord syndrome,...
Originally I had planned to publish a compilation of my experiences with tethered cord syndrome, rare disease diagnosis, neurosurgery, and CSF leak, in time for my one year anniversary. My body and mind are currently not up for this seemingly monumental task, so I will be brief.
I have mixed...
I recorded this video almost a year ago during the 2019 #PainAwarenessMonth.
I was reflecting last night on how I have not seen any friends in person over the past 6 months due to COVID. I chuckled a bit at this thought because, truth be told, quarantine life isn’t much different than my PreCOVID life. Only now, my absence on social outings is just seen as more...
